The other shoe dropped! Not about Keian but about me. I got a call from my rhumatologist this morning. She has been researching the last 3 days. Something to her seemed familar when I was talking about my dad's symptoms and my own. She has been searching for some notes she took a long long time ago. I am going to see a neurologist. I don't know if I should be excited that it is not Lupus or sad that the aches and pains will get worse.
I have been to the extreme already. Not being able to use my hands or walk. That was a couple years ago. It got better. I refuse to let this beat my spirit! I am strong and I can get a long just fine. I have already found ways to cope. It is just a matter of finding more ways to cope. I am not any worse off than I was a few days ago. No matter what the doctors tell me this has always been there.
Keian had an evaluation this morning. We had a sight teacher come to visit. He is doing well for his "age." (If you adjust him to his developmental age which is about 3 months) We will be having another person come to visit us reguarly by the end of the month. This is for feedings. We are going to start working on eating by mouth. He is not nearly coordinated I think to eat solids but they say he is and that the calories will do him some good.
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