Runny nose

Ok I never thought I'd see the day that a runny nose worries me. For most kids, runny noses are a common thing. Runny noses are just a part of childhood. What worries me is that of Keian gets a runny nose he starts to choke and then throws up. Then he aspirates on the puke. Not fun and not nice. Is it a sinus infection? No its just the common runny nose. Keian is just having problems with swallowing increased secretions. He may grow out of it and he may not. I just have to keep the suction machine handy.
On another note we have applied for respite care. It may be a while to get it but eventually we will. That would give us some needed breaks and get us some rest every once in a while.

Its been a while!

It's been a while. Ok ok I know. I need to keep this thing updated especially since I am trying hard to spread the word about Keian's condition. Keian currently has been suffering from pnemonia off and on. We need to be careful about feeding him anything by mouth when he is sick. The good news is that his g-tube is beg enough to handle baby food when mixed with water. The bad news is that the little booger LOVES food. He dances when ever he gets food in his mouth. Poor guy can only have a taste or two of food.