Surgery

We are now looking foward to Keian having surgery on his feet! Surgery day is August 13th. Keian will be in casts about 6 weeks following surgery.

Depending on others

I have learned a lot over the past years about being humble and asking for help. With a special needs son you can't not help but depend on the kindness of strangers and friends. Over the past year or so I have felt like all I have done is take, take, take from people. I have wanted to be able to give to others as much as I have been given to. Yesterday I got the chance.
I got a call from some missionaries asking me if I knew of a shuttle that could get up to Seattle Children's Hospital. I immediately knew someone needed my help. Although I wasn't able to be there personally for this person, I was able to pull together the resources that I have learned about to lessen the burden of a family that was so critically in need of help. I am glad I have gotten the oportunity to share my knowledge with others and help lessen the burden on their family. I am glad I have gotten the opportunity to serve a family, no matter how small. I am thankful that our Lord listens to our prayers and gets people in touch with the right people. I am glad that we have such a loving Father in Heaven who allows us to show kindness and the love of the savior through serving.

Good News

Today has been a good day! We took the long trip to Seattle again. This time I took Jessica and Kyle. We started our day at 4 am and got off on the road at 5:30. We only had one appointment today and that was just an upper GI.
Keian HATED it!
First they started off by taking and picture (x-ray) of his stomache. Oh boy did her scream! He hated how close the machine was getting to him. Then the technitian gave him a toy with spinning lights. Keian started to laugh and I thought he might actually be ok. The doctors came in and then they proceeded to strap Keian in to a contraption that kept him perfectly still other than his arms. This contraption held his head in place and tilted him side to side. Keian not only didn't like the fact that it moved but every time he heard any of of the velcro being undone he'd scream louder. By the time the doctors and the technitians were ready to go, Keian was at a full out screaming in crying. Poor guy was so scared it took him a full half our to calm him down and he passed out from exahstion.
Well Keian passed with flying colors! His nissen is fine. He is not refluxing and getting anything up. He can get stuff up however if he coughs hard enough. We now need to keep Keian's airway clean which means no food when he gets a runny nose. Sunctioning out his nose on a daily basis if sick and giving him polmacort on a daily basis.
Well after the doctor the family went to the Children's museum in Seattle. Boy did Kyle and Jessica have fun. It was so much fun that neither of them wanted to leave and we had to promise to come back another time.

My daily life

Ok many of you have wondered what my life is really like having a child with special needs. Well its a bit busy. Here is a run down of what my day is usually like.

7am Roll out of bed and get Jessica some breakfast.
7;30 Check on Keian to make sure he is breathing, change a diaper and sometimes change his bedding, Refill Keian's feeding bag for breakfast, give keian his morning meds
8:00 Check my email, list of calls to make and get a little bit of homework done if there is time.
9 am start my phone calls
My list of calls
1. Call and schedual appointments at children's hospital for orthopedics, pulminology, urology, cardiologist, hearing and speach, and xrays.
2. call doctor in gentetics to get referals done for those that are not updated.
3. call back and schedual appointmsents that needed referals
4. call people for people and arrange gas vouchers for the days I need to travel to Seattle.
5. Call 3 to 4 people to arrange a babysitter for Jessica.
6. Call to refill Keian's, Lee's and my medications.
7. call to schedual a WIC appointment
8. Call DR in town to get a check up for Keian to get shots or imunizations
9. call dietician to order tube supplies and feeding supplies and schedual appointment for the month
10. call to check on what needs to be done to get keian's wheel chair approved
(note: most of these calls are made on a weekly basis. Usually I can not get through all of them by 11 am because I end up playing phone tag and Jessica starts acting up)
11am Make lunch and eat
12 feed Keian lunch
12:30 play with Jessica
1;30 Do Keian's physical therapy
2:30 Keian is down for a nap. Time to get some homework done while Jessica plays on the computer
3:30 Time to start dinner if Lee is comming home or take a nap if he is working overtime

Ok no wonder I never get anything done!!!! I need a secretary!