Today has been rough! Man I could sometimes spend two whole days on the phone making appointments and coordinating appointments for Keian. We have been back and fourth between the doctors trying to convince the schedualers that I can't drive up to Seattle 3 times in a week or even stay there for a week. On top of all that his primary care physician decided to change doctors for his kidney to one in Seattle. Now I get to squeeze in another consult to an already busy day on August 7th. It looks like he may end up doing his EEG and the test for his kidney that day also.
Keian has been so vocal the last couple days. He is using a lot of AHHHs lately. He doesn't differetiate between many consanents. He has done G and D so far. Hopefully I am just being a worried mother and he doesn't have problems with hearing.
His little braces are halping quite a bit with his hands. I have noticed lately Keian does not use his thumbs much. It is suprising to me how inventive he is with his hands to get his pacifier back in his mouth.
Today was also a day to sart feeding rice cereal and not through a bottle. Keian has had it before but never from a spoon. I don't think he ever really tasted it. He seemed to like it since it was mixed with Bananas. He didn't eat much of it but that's ok. I just want him to get use to puting food in his mouth since he doesn't take from a bottle well at all. Maybe I can transition him to solids easily and give him liquids through his NG tube. I do need to get him over the sucking air thing though. Eventually he will need fluids taken by mouth is I am ever to get rid of the NG tube. Maybe a sippy cup will help but he's no where near coordinated yet.
I heard from Social Security today. The lady said that they wanted more info on the doctors and stuff that has happened in the last four months. She said that they were leaning towards denying him but with more information we should be able to get things approved. This could be a huge step for us! It may allow for us to go back to Utah to be near Lee's family. If he is approved we then can get medicare for him on top of any other insurance. This would then pay for any extra things that we could not afford if we were to move to Utah.
Things seem to be looking up. I'm glad we have the Lord in our lives. He has been a comfort through all of this.