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Saturday, July 5, 2008

My daily life

Ok many of you have wondered what my life is really like having a child with special needs. Well its a bit busy. Here is a run down of what my day is usually like.

7am Roll out of bed and get Jessica some breakfast.
7;30 Check on Keian to make sure he is breathing, change a diaper and sometimes change his bedding, Refill Keian's feeding bag for breakfast, give keian his morning meds
8:00 Check my email, list of calls to make and get a little bit of homework done if there is time.
9 am start my phone calls
My list of calls
1. Call and schedual appointments at children's hospital for orthopedics, pulminology, urology, cardiologist, hearing and speach, and xrays.
2. call doctor in gentetics to get referals done for those that are not updated.
3. call back and schedual appointmsents that needed referals
4. call people for people and arrange gas vouchers for the days I need to travel to Seattle.
5. Call 3 to 4 people to arrange a babysitter for Jessica.
6. Call to refill Keian's, Lee's and my medications.
7. call to schedual a WIC appointment
8. Call DR in town to get a check up for Keian to get shots or imunizations
9. call dietician to order tube supplies and feeding supplies and schedual appointment for the month
10. call to check on what needs to be done to get keian's wheel chair approved
(note: most of these calls are made on a weekly basis. Usually I can not get through all of them by 11 am because I end up playing phone tag and Jessica starts acting up)
11am Make lunch and eat
12 feed Keian lunch
12:30 play with Jessica
1;30 Do Keian's physical therapy
2:30 Keian is down for a nap. Time to get some homework done while Jessica plays on the computer
3:30 Time to start dinner if Lee is comming home or take a nap if he is working overtime

Ok no wonder I never get anything done!!!! I need a secretary!

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