Stress

I am dealing wonderfully with stress. All I can say is that vitamins help! These days my life seems to be all about stress. I have a 7 month old baby that has a rare genetic disorder. I have a 3 year old daughter who is starting preschool in a couple weeks. I am fighting with my ex husband for visitation rights for my 8 year old son. My ex doesn't want me seeing him. My husband got hit in the head with a 40ft steel beam 10 years ago and is dealing with anger and depression issues realted to a close head injury. Not to mention his back wich hurts him all the time. I have stress in my life! The one thing that has been helping me though is knowing that I can manage it all.
My husband asked me this morning why I can't stay angry at people. I told him it takes so much more energy out of me and that my energy is better served being kind and forgiving to people. It is true. Being angry takes so much more energy that letting things go and and getting on mith my life.

Here is a link about the proceedure Keian is having in conjuction with having a Gtube placed in his stomache. This should answer many questions some of you may have. They tell me with as small as Keian is and the many problems that are ongoing with him he will definately have to stay 5 days instead of 3. They want to make especially sure that he is ok to go home home over the moutains.
http://www.webmd.com/heartburn-gerd/Fundoplication-surgery-for-gastroesophageal-reflux-disease-GERD

The last two days have been crazy!! Last night I got a call from Keian's pediatrician. She told me they were cancelling the procedure they had scheduled for Tuesday because I had an appointment in Seattle and they may end up doing the needed surgury for the Gtube right away. I had 14 hours to find a way up to Seattle as no one called to tell me that the appointment had been moved up.
So we went to Seattle today. I want to thank those that helped out! I would not have been able to go if it not for all of you.
We scheduled surgury for September 14th. I will need to spend 5 days in Seattle. We are also having a proceedure done that will keep Keian from Refluxing anymore. They will turn his stomache around the esophagus. This will keep him from bringing anything up.

Well I got some good news from my doctor today! We found out that Keian can have his NG tube pushed down into the small intestine until we can get the surgury done! This is good new as we won't have to worry about aspiration as much. We will be doing the proceedure tomorrow as needs to be done under x-ray so they know where to place the thing. I am also leaving for Seattle next week. I am hoping they will be able to do the surgury right away. It would definately be a blessing if it all worked out that way.

I am very thankful for my memory today. God has blessed me with an amazing memory. Some days it seems shot and I have a hard time recalling people's names. However when I can recal details of things that have happened nearly 18 years ago, I know it is a blessing from God.
Keian seems to be doing better today although I can tell the reflux is a bit of a problem. We have an appointment in Seattle on September 4tth for a consultation on the Gtube. we already decided on it and I think it is ridiculous that they won't schedual the surgury now so I can plan for it. I am going to try to have the surgury done the week of the 17th since we have to go up again for more appointments. Hopefully this tube will fix all the problems the NGtube is causing and we can stay out of the hospital from now on.

Well if you did not know we were back in the hospital. We are now home and everything is fine. However Tuesday morning scared the bajebies out me and Lee. Keian Aspirated at about 3 am. I heard him and immediately got up and started suctioning him. He usually recovers on his own and everything is usually fine. This time was different. I had to give him mouth to mouth breaths because he was not breathing. We called an abulance but luckily before they got there he was doing better and breathing on his own. I'm so glad I took CPR training for infants even though it was like 18 years ago. I took it as a teenager when I was babysitting regularly. My school offered a babysitting class that included infant and child CPR. I never thought I would ever have to use it let alone on my own child. I know the Lord was with me giving me the hints on what to do becasue I can't believe I was so calm through it all. I think I was more scared when Keain was having seizures from low blood sugar. The doctors are agreeing with me that we need to get his GTube done right away. Keian's pediatrician is trying to get it pushed through as soon as possible. He does so much better without the tube in his nose as far as aspiration goes but it will be at least 6 months more before he can totally sustain himself with solid foods. He is now 11 lbs 1 oz wich is wonderful, but he needs to be 13 pounds before they really want to push the solid foods. If he continues the way he has with growth over the last three months it is going to be 6 months before he gets there. That is just too long to have that tube down his nose. Plus we want to do it before cold and flu season or else we will definately be stuck at home all the time. I want to tell Granny and Mom thanks for all the help with Jessica. It has been nice having my mother here to help out. I wish you were in town more often. I can't wait for my sister Lisa and her husband to get here. We all have missed them and are looking forward to the big get together next week. Well all for now, I'm going to spend some much needed time with Jessica.

Grandma comes today!!!!! We are very excited to be having my mother visit. This is the very first time that she will get to see Keian in person.
Keian is doing very well lately although we are keeping him away from people as much as possible until he has his gtube put in his stomach. We don't want any colds and we are washing our hands like crazy.
We want to congratulate our friend Jean on going to the temple for the first time on Saturday. We are all so proud of you!!! I wish we could have been there.
Well all for now. We have lots to get done today.