Scary business!

Today we had a bit of a scare! Lee had come home from work and picked Keian up out of his seat. Lee felt something wet drip on his hands and thought his feeding tube had come disconnect. We went to reconnect the thing and found Keian had pulled the entire thing out!

Now with a feeding tube if it gets pulled out of the stomach it can close up within a matter of minutes. I grabbed Keian's extra tube and layed Keian on the floor. It would not go in. We had to run Keian up to Memorial and have someone insert one. It was an hour before we actually got a tube inserted. Luckily it did not close! If it had Keian would have had to have another surgery to have it placed again.

The nurses measured Keian and we found out that Keian's tube was just too small. No one told me that once it gets too small it will fall out.

Urology Appointment

Hi everyone!!!!!!!!

We had an awesome day today in Seattle! Today was our follow up with the Urologist! We started out the day by having an ultra sound and a renal scan done. Keian did not like either of them. The probe from the ultra sound scared the little guy, but by the end he was laughing because it tickled.

The renal scan was scary for poor Keian. First they put an IV in him. They poked him the first time only for his vein to collapse and they couldn't use that site. They poked him a second time got the darn thing all ready to tape down only to find it was an artery and not a vein.They pulled it out. The poor young nurse said to me I'm sorry I can't take doing this to your little guy I need to leave. She had to be only about 24 years old at the oldest. She left in tears. Poor nurse didn't have the heart to poke Keian any more. Luckily on of the veins in Keian's head was really good so they called in the IV team and in seconds they had the thing all done up and ready to go. Keian was screaming the entire time this was going on and when it was over he collapsed in my arms to sleep until we moved to the next room. Now if anyone of you hasn't yet heard Keian scream its kind of a pathetic little screech that sounds like a cross between a mouse and chicken. Not really loud but you can tell he's not taking things well.
We got into our little room and as soon as I put Keian down in the cradle he started freaking out. When he freaks out he pulls his limbs in and tightens everything up. Since we wanted his lower half fairly straight I had to hold his head in my arms and lay my head next to his talking to him gently. Poor guy just wanted to watch a movie so they put on Baby Einstein for him which he watched 3 times quietly until the scan was complete.

The results were:

His one normal Kidney is nice and strong!!! No problems.

The one on his left side is a nub. The entire left side of his renal system is underdeveloped. There should be sphincters in the tubes that prevent the urine in his bladder from going back up the tube to his kidneys. He does not have these. This puts Keian at risk for kidney infections. If the nub is functional we need to have it removed If it is not functional Keian can get off antibiotics and not have to have another surgery.

Keian will not have to have that surgery because ......IT'S NOT FUNCTIONAL!!!!!!!!!!!!!!!!!!!

Stressed

I am stressed! EVERYTHING seems to be piling up. My house, homework, phone calls, laundry! I don't know how I am going to get through the next month.

First off Keian's surgery is still on for August 13th. Dr. White decided not to take any time off work for the time being. Second we have been trying to go throught the house to get rid of junk we just don't need. Third I have a quarter ending and a bunch of work to do. Fourth we need to start fundraising for a vehical. My van is starting to have problems and I'm afraid we may be putting a band aid on broken bone.

On top of everything my doctor has put me on a new medication for depression and anxiety. It works better for me however I need a higher dose and can't increase for another week. On the upside of things I seem to have way more energy to do what I need to.

I'm starting to feel overwelmed. I need an assistant! Anyone want a job that pays next to nothing? I didn't think so!

New medications

I know there are some medications that my doctors want me to try out. I just am not sure what else I can do. I have been up ALL night. it is now 4:30 am and I am still awake. My body just can't get use to this stupid medication. I take it in the morning and I am asleep. I take it in the evening and I am awake. I can't win. I even tried to take a sleeping pill. I have incredibly too much energy with this new medication. I guess thats a good thing since I really am going to need it in the comming months. With Lee working all the time, I barely will have any time to my self.

Surgery

We are now looking foward to Keian having surgery on his feet! Surgery day is August 13th. Keian will be in casts about 6 weeks following surgery.

Depending on others

I have learned a lot over the past years about being humble and asking for help. With a special needs son you can't not help but depend on the kindness of strangers and friends. Over the past year or so I have felt like all I have done is take, take, take from people. I have wanted to be able to give to others as much as I have been given to. Yesterday I got the chance.
I got a call from some missionaries asking me if I knew of a shuttle that could get up to Seattle Children's Hospital. I immediately knew someone needed my help. Although I wasn't able to be there personally for this person, I was able to pull together the resources that I have learned about to lessen the burden of a family that was so critically in need of help. I am glad I have gotten the oportunity to share my knowledge with others and help lessen the burden on their family. I am glad I have gotten the opportunity to serve a family, no matter how small. I am thankful that our Lord listens to our prayers and gets people in touch with the right people. I am glad that we have such a loving Father in Heaven who allows us to show kindness and the love of the savior through serving.

Good News

Today has been a good day! We took the long trip to Seattle again. This time I took Jessica and Kyle. We started our day at 4 am and got off on the road at 5:30. We only had one appointment today and that was just an upper GI.
Keian HATED it!
First they started off by taking and picture (x-ray) of his stomache. Oh boy did her scream! He hated how close the machine was getting to him. Then the technitian gave him a toy with spinning lights. Keian started to laugh and I thought he might actually be ok. The doctors came in and then they proceeded to strap Keian in to a contraption that kept him perfectly still other than his arms. This contraption held his head in place and tilted him side to side. Keian not only didn't like the fact that it moved but every time he heard any of of the velcro being undone he'd scream louder. By the time the doctors and the technitians were ready to go, Keian was at a full out screaming in crying. Poor guy was so scared it took him a full half our to calm him down and he passed out from exahstion.
Well Keian passed with flying colors! His nissen is fine. He is not refluxing and getting anything up. He can get stuff up however if he coughs hard enough. We now need to keep Keian's airway clean which means no food when he gets a runny nose. Sunctioning out his nose on a daily basis if sick and giving him polmacort on a daily basis.
Well after the doctor the family went to the Children's museum in Seattle. Boy did Kyle and Jessica have fun. It was so much fun that neither of them wanted to leave and we had to promise to come back another time.